The point was for me to have an eye exam prior to taking the drug and regular eye exams during the course of my treatment with the drug. Since the referrals never came I was not going to take the risk. Added to that, I had an experience with prednisone too that was supposedly rare and typically happens after prolonged use. It was scary, I had just started taking prednisone, and what I experienced was not supposed to happen when it did but it did. Now I read up on everything, I consult the PDR regularly, I ask my mother lots of questions and I ask questions of others with lupus. We are all different.

I wanted to talk about the study and the benefits found via this study because it’s important to know. At the same time, because many folks get to spend 10 minutes with their doctors (more if they’re lucky, less if they’re not) they need to know all of the “scary stuff” just in case. Because of the experience I had with Prednisone, I ask my doctors everything and together we make decisions about my care and how to proceed.